Today was amazing for one reason – we met a family in-person whose daughter has the same condition as Taylor. We went back to visit the UW program and watch a “tweeners” class (12-18 months) in progress. During our first visit, only the toddlers class (18-36 months) was in session. I started chatting with a mom behind the viewing glass (each classroom has a very large window where you can watch the class, but the kids can’t see you) and the program director comes in and says “oh, I’m so glad you met.” It turns out she had designed for us to be there at the same time. While we were chatting, I had noticed her daughter Nora, a cute 2.5 year-old running around the room and having fun. I couldn’t believe it when I learned she was missing her corpus callosum too. No kidding – David and I felt like we were meeting the most important rock star. It was so exciting to meet another family dealing with our specific issue and more importantly, to see this little girl so full of life and capability.
As it turns out, Nora also has other issues, so the corpus callosum is the least of their concerns. Nora started sitting, crawling, walking all within 3 months between 15-18 months. She really thrived in the UW program. We’ve always hoped that once Taylor develops new pathways in her brain we’ll see a similar spurt of growth. It gives us great comfort and hope to watch this little gal in action. Of course, every kid is different, blah, blah, but to meet a kindred spirit was amazing. Nora’s mom was very nice, answered a million questions and gave us her contact information.
I also met lots of nice mom’s in the tweener class and it’s so inspiring to see these kids with different challenges, and how heroically the families are managing. I feel so silly for being reluctant to join the special needs community – our experience so far has proven that we’re lucky and blessed to meet such wonderful people.
As it turns out, Nora also has other issues, so the corpus callosum is the least of their concerns. Nora started sitting, crawling, walking all within 3 months between 15-18 months. She really thrived in the UW program. We’ve always hoped that once Taylor develops new pathways in her brain we’ll see a similar spurt of growth. It gives us great comfort and hope to watch this little gal in action. Of course, every kid is different, blah, blah, but to meet a kindred spirit was amazing. Nora’s mom was very nice, answered a million questions and gave us her contact information.
I also met lots of nice mom’s in the tweener class and it’s so inspiring to see these kids with different challenges, and how heroically the families are managing. I feel so silly for being reluctant to join the special needs community – our experience so far has proven that we’re lucky and blessed to meet such wonderful people.
We're tired today from another great week-end at Whidbey Island. David's mom's side of the family had a reunion over the week-end and it was really cool to see so many cousins together. David's Grandmother Helen certainly has a fine bunch of great grandbabies. This is a pic of the crew.
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