The latest Taylor update involves the endocrinologist. Taylor ended her big week on Friday with an appt at the endocrinologist -who we hadn't seen in nearly a year. We've had her hormone levels checked a few times, but this was our first appointment - mainly to make sure her levels were OK and that her growth was on track. Thankfully, this was a positive appointment. Dr. Dilchek is a friendly lady and was very pleased with Taylor's progress. It was interesting to recap our year - allergies, seizure, therapy, neurology and everything in between. She said it was amazing, and great, that we've avoided medication with all the complications we've seen.
The good news - Taylor was on the growth chart! Barely - she is 3% in height and head circumference - a little less for weight. It's great that she is continuing to grow proportionately and following a positive growth curve. It's not a surprise that she's a peanut - but we're thrilled that she's on the chart and no obvious reason for concern. After her appointment they took an xray of her hand/arm to check her bone age (and to compare to last year's xray). We took her back on Saturday morning for them to take 3 vials of blood- the most they can take for her size. They are doing a full blood work-up to make sure all looks well. We wanted to give her a day break since she just had her surgery on Thursday.
Phew - poor kid, but she continues to roll with it very well. She's a little trooper and we're so proud of how tough she is. And thankful that we had a good appointment!
Taylor Gurry
Taylor is our precious 8 month old baby girl. She is a sweetheart with huge smiles, sparkling eyes, and the cutest giggle. This is one part of her journey - but most of her days are filled with cuddles, laughter, and play.
Sunday, May 31, 2009
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