Well, we heard from Dr. Spector yesterday and thank goodness we didn't have our hopes up for anything definitive. He left a message and then I spoke with him later in the day. Basically he said that her EEG did show signs of seizure activity and that she is susceptible to seizures. He recommended that we see our neurologist for a recommendation on what to do next. Thanks. Serousily - we waited a week to confirm that yes, she did have a seizure - she might have more - and we should see our neurologist. Incredibly helpful. So, thank goodness we didn't have our hopes up for anything more definitive. Now we'll see how long it takes to get in the door of the neurologist. The big question is if she'll need medication. We hope she doesn't, because there can be tough side effects. We have a lot more to learn though, so as always, it's one day at a time.
Thankfully, Taylor seems fine. She is happy and smiley and babbling up a storm right now. We are having so much fun with her. She is having a great time riding in her car outside and her new bike inside (Nana found it while she was here). She hangs on to the handle bars and smiles so big. She loves being such a big kid. Her therapy is also going well - she is enjoying practicing being on all fours and working on crawling. She is also having fun practicing walking by pushing a baby carraige. All of this is assisted, but it is progress.
We're having a great Memorial Day week-end. Just relaxing at home and enjoying family time. The sun has been shining, so we've been going to the pool the last few days, spending time in the yard, and biking/riding, etc. Taylor went in the pool today and loved it. David carried her around for about 40 minutes and she had a great time. We're encouraged that she will a happy swimmer this summer. It was only 70 degrees today, so it will only be better as the summer gets nicer. Last night, Lauren had the end of her week of mini-swim team - she swam the entire lenght of the pool - 25 yards in 45 seconds. We were so proud of her - she was a bit late to embrace swimming, so it's great to see her doing so well. Jacob is enjoying the pool too - he has the idea of swimming down - he can swim pretty well. He just hasn't figured out how to take a breath without hanging on to the wall or putting his feet down. We're hoping after a few lessons, he'll be able to safely swim this summer.
So, even with the seizure hiccup, we're having a good time and enjoying each day. I'll post pictures soon so you can see Taylor on her new bike and in her new swimsuit - she's quite the looker.
Taylor Gurry
Taylor is our precious 8 month old baby girl. She is a sweetheart with huge smiles, sparkling eyes, and the cutest giggle. This is one part of her journey - but most of her days are filled with cuddles, laughter, and play.
Saturday, May 23, 2009
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